HRSA Grant Program
HRSA Sickle Cell Disease Newborn Screening Follow up Program Grant: HRSA-21-036
The purpose of the follow up program is to facilitate access to quality sickle cell disease care in Nevada by:
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Conducting outreach and working with individuals and families with SCD from the time a newborn screen identifies a child with possible SCD, through diagnosis, treatment, and follow-up.
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Provide education to families and providers.
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Disseminating resources.
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Collaborating with state newborn screening programs; an
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Linking individuals and families to community resources, evidence-based SCD care, and care coordination within the communities where they reside to the fullest extent possible.
For more information on SCAN, SCD/SCT, or HRSA Sickle Cell Disease Newborn Screening Follow up program
Email: scan@sicklecellnv.org
**This resources/program is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $184,000 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov. -5/26/22
About HTCNV/SCCNV
The Hemostasis & Thrombosis Center of Nevada (HTCNV) is Nevada's only federally designated hemophilia treatment center (HTC). As of January 1st, 2020, the HTCNV/ Sickle Cell Center of Nevada (SCCNV) became the statewide lead for the HRSA Sickle Cell Disease Treatment Demonstration Program (SCDTDP) grant.
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As a participant of the Pacific Sickle Cell Regional Collaborative (PSCRC), the SCCNV aims to:
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1. Improve accessibility to quality, coordinated, & comprehensive SCD health care services for affected individuals.
2. Strengthen the network of knowledgeable providers utilizing evidence-based practices.
3. Expand data collection and processing to document regional improvements in access, capacity, & outcomes.
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In addition to staffing a multidisciplinary team of specialists, the HTCNV has a provider accessible 24 hours a day, everyday. While primarily based in Las Vegas, the HTCNV maintains an office in Reno & services patients in Ely, Elko, Winnemucca, & Owyhee, Nevada.